An Autistic Perspective on Workplace Disclosure and Accommodation
DOI:
https://doi.org/10.15173/cjae.v4i1.5422Keywords:
Autism, ADHD, accommodation, disclosure, employmentAbstract
The negative stereotypes associated with autism have created many barriers to employment. As a result, the autistic population has some of the lowest workforce participation rates among all types of disability; with about only one-quarter of the working age population actively participating. These low unemployment rates persist despite many autistic people expressing the desire to work and being more than capable to do so. Among successfully employed autistic people, disclosure and effective accommodations appear to be key factors for the maintenance of long-term employment. Thus, the present study aimed to provide a qualitative exploration of autistic perspectives on how managers/organizations can encourage disclosure and accommodation requests. In addition, this project sought to explore how managers and/or organizations can best support their autistic employees following an accommodation request. Results from the thematic analysis revealed four primary themes (i.e., authentic culture of caring and inclusivity; strengths approach; individualization and collaboration; and clear and consistent structure/communication) stratified by two categories (i.e., encouraging disclosure and accommodation requests; and supporting autistic employees). The results from this study provide managers/organizations with a practical framework for encouraging disclosure and informing the accommodation process.
References
Andela, M., & van der Doef, M. (2019). A comprehensive assessment of the person– environment fit dimensions and their relationships with work-related outcomes. Journal of Career Development, 46(5), 567-582.
Antshel, K. M., & Russo, N. (2019). Autism spectrum disorders and ADHD: Overlapping phenomenology, diagnostic issues, and treatment considerations. Current psychiatry reports, 21(5), 1-11.
Attwood, A. (2006). The complete guide to Asperger's syndrome. Jessica Kingsley Publishers.
Bowman, A. D. (2020). What we know about employers’ perspectives on successfully integrating adults with Autism Spectrum Disorders in the workplace. International Journal of Psychiatry Research , 3(1), 1-4.
Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative research in psychology, 3(2), 77-101.
Bury, S. M., Hedley, D., Uljarević, M., & Gal, E. (2020). The autism advantage at work: A critical and systematic review of current evidence. Research in Developmental Disabilities, 105, 103750.
Clarke, V., & Braun, V. (2013). Teaching thematic analysis: Overcoming challenges and developing strategies for effective learning. The psychologist, 26(2).
Craig, F., Lamanna, A. L., Margari, F., Matera, E., Simone, M., & Margari, L. (2015). Overlap between autism spectrum disorders and attention deficit hyperactivity disorder: searching for distinctive/common clinical features. Autism research, 8(3), 328-337.
Cope, R., & Remington, A. (2022). The Strengths and Abilities of Autistic People in the Workplace. Autism in Adulthood , 4 (1), 22-31.
Government of Canada [Internet]. (2018). Autism spectrum disorder among children and youth in Canada 2018 . Available from: https://www.canada.ca/en/publichealth/services/publications/diseases-conditions/autismspectrum-disorder-children-youth-canada-2018.html.
Hagner, D., & Cooney, B. F. (2005). “I do that for everybody”: Supervising employees with autism. Focus on autism and other developmental disabilities, 20(2), 91-97.
Howitt, D. (2010). Introduction to Qualitative Research Methods in Psychology. Pearson.
Johnson, T. D., & Joshi, A. (2014). Disclosure on the spectrum: Understanding disclosure among employees on the autism spectrum. Industrial and Organizational Psychology , 7 (2), 278-281.
Johnson, T. D., & Joshi, A. (2016). Dark clouds or silver linings? A stigma threat perspective on the implications of an autism diagnosis for workplace well-being. Journal of Applied Psychology, 101 (3), 430-449. doi:http://dx.doi.org/10.1037/apl0000058
Keel, J. H., Mesibov, G. B., & Woods, A. V. (1997). TEACCH-supported employment program. Journal of Autism and Developmental disorders, 27(1), 3-9.
Khalifa, G., Sharif, Z., Sultan, M., & Di Rezze, B. (2020). Workplace accommodations for adults with autism spectrum disorder: a scoping review. Disability and rehabilitation , 42 (9), 1316-1331.
Lai, M. C., Anagnostou, E., Wiznitzer, M., Allison, C., & Baron-Cohen, S. (2020). Evidence-based support for autistic people across the lifespan: Maximising potential, minimising barriers, and optimising the person–environment fit. The Lancet Neurology, 19(5), 434- 451.
Lewis, L,. F. (2018). Identifying autism spectrum disorder in undiagnosed adults. The Nurse Practitioner 43(9):p 14-18, DOI: 10.1097/01.NPR.0000544285.02331.2c
Lindsay, S., Osten, V., Rezai, M., & Bui, S. (2021). Disclosure and workplace accommodations for people with autism: A systematic review. Disability and Rehabilitation, 43 (5), 597-610.
May, T., Brignell, A., Hawi, Z., Brereton, A., Tonge, B., Bellgrove, M. A., & Rinehart, N. J. (2018). Trends in the overlap of autism spectrum disorder and attention deficit hyperactivity disorder: prevalence, clinical management, language and genetics. Current Developmental Disorders Reports, 5(1), 49-57.
Miller, D., Rees, J., & Pearson, A. (2021). “Masking Is Life”: Experiences of Masking in Autistic and Nonautistic Adults. Autism in Adulthood, 3(4), 330-338.
Mottron, L., Dawson, M., Soulières, I., Hubert, B., & Burack, J. (2006). Enhanced perceptual functioning in autism: an update, and eight principles of autistic perception. Journal of autism and developmental disorders , 36 (1), 27-43.
Nicholas, D. B., Mitchell, W., Dudley, C., Clarke, M., & Zulla, R. (2018). An ecosystem approach to employment and autism spectrum disorder. Journal of autism and developmental disorders , 48 (1), 264-275.
Nicholas, D., Mitchell, W., Zulla, R., & Dudley, C. (2019). Perspectives of employers about hiring individuals with autism spectrum disorder: Evaluating a cohort of employers engaged in a job-readiness initiative. Journal of vocational Rehabilitation , 50 (3), 353- 364.
O’connor, K. (2012). Auditory processing in autism spectrum disorder: a review. Neuroscience & Biobehavioral Reviews, 36(2), 836-854.
Parr, A. D., & Hunter, S. T. (2014). Enhancing work outcomes of employees with autism spectrum disorder through leadership: Leadership for employees with autism spectrum disorder. Autism , 18 (5), 545-554.
Pellicano, E., Lawson, W., Hall, G., Mahony, J., Lilley, R., Davis, C., ... & Yudell, M. (2020). Documenting the untold histories of late-diagnosed autistic adults: A qualitative study protocol using oral history methodology. BMJ open, 10(5), e037968.
Peng, Y., & Mao, C. (2015). The impact of person–job fit on job satisfaction: the mediator role of Self efficacy. Social Indicators Research, 121(3), 805-813.
Raymaker, D. M., Teo, A. R., Steckler, N. A., Lentz, B., Scharer, M., Delos Santos, A., ... & Nicolaidis, C. (2020). “Having all of your internal resources exhausted beyond measure and being left with no clean-up crew”: Defining autistic burnout. Autism in adulthood, 2(2), 132-143.
Romualdez, A. M., Walker, Z., & Remington, A. (2021a). Autistic adults’ experiences of diagnostic disclosure in the workplace: Decision-making and factors associated with outcomes. Autism & Developmental Language Impairments , 6, 23969415211022955.
Romualdez, A. M., Heasman, B., Walker, Z., Davies, J., & Remington, A. (2021b). “People might understand me better”: Diagnostic disclosure experiences of autistic individuals in the workplace. Autism in Adulthood , 3(2), 157-167.
Russell, G., Kapp, S. K., Elliott, D., Elphick, C., Gwernan-Jones, R., & Owens, C. (2019). Mapping the autistic advantage from the accounts of adults diagnosed with autism: A qualitative study. Autism in Adulthood , 1 (2), 124-133.
Schall, C. M. (2010). Positive behavior support: Supporting adults with autism spectrum disorders in the workplace. Journal of Vocational Rehabilitation , 32 (2), 109-115.
Scott, M., Milbourn, B., Falkmer, M., Black, M., Bӧlte, S., Halladay, A., ... & Girdler, S. (2019). Factors impacting employment for people with autism spectrum disorder: A scoping review. Autism , 23 (4), 869-901.
Statistics Canada. (2017). Labour force status for adults with disabilities by disability type. https://www150.statcan.gc.ca/t1/tbl1/en/tv.action?pid=1310034801
Stewart, R. (1996). Motivating students who have autism spectrum disorders.
Taurines, R., Schwenck, C., Westerwald, E., Sachse, M., Siniatchkin, M., & Freitag, C. (2012). ADHD and autism: differential diagnosis or overlapping traits? A selective review. ADHD Attention Deficit and Hyperactivity Disorders, 4(3), 115-139.
Urbanowicz, A., Nicolaidis, C., Houting, J. D., Shore, S. M., Gaudion, K., Girdler, S., & Savarese, R. J. (2019). An expert discussion on strengths-based approaches in autism. Autism in Adulthood, 1(2), 82-89.
Van Vianen, A. E. (2018). Person–environment fit: A review of its basic tenets. Annual Review of Organizational Psychology and Organizational Behavior, 5, 75-101.
Vogeley, K., Kirchner, J. C., Gawronski, A., van Elst, L. T., & Dziobek, I. (2013). Toward the development of a supported employment program for individuals with high-functioning autism in Germany. European archives of psychiatry and clinical neuroscience, 263(2), 197-203.
Waisman-Nitzan, M., Gal, E., & Schreuer, N. (2021). “It’s like a ramp for a person in a wheelchair”: Workplace accessibility for employees with autism. Research in Developmental Disabilities, 114, 103959.
Wong, P. S., Donelly, M., Boyd, B., & Neck, P. A. (2022). Beyond Adaptations and Accommodations: Management Practice that Matters as the Key to Retention of Employees with Autism (Part 2). Revista de Management Comparat International, 23(2), 210-230.
Wong, P. S., Donelly, M., Neck, P. A., & Boyd, B. (2018). Positive autism: Investigation of workplace characteristics leading to a strengths-based approach to employment of people with autism. Revista de Management Comparat International, 19(1), 15-30.
Zwicker, J., Zaresani, A., & Emery, J. H. (2017). Describing heterogeneity of unmet needs among adults with a developmental disability: An examination of the 2012 Canadian Survey on Disability. Research in developmental disabilities, 65, 1-11.
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