The The Risk Factors and Preventative methods of Self-Harm and Suicidality for Autistic People

Auteurs-es

  • Kai Elias Forcey-Rodriguez First Year M.Ed. Student in Developmental Psychology and Education: Special Education (Autism) and Mental Health Concentration at the University of Toronto-OISE https://orcid.org/0000-0002-7366-4508

DOI :

https://doi.org/10.15173/cjae.v3i1.5127

Mots-clés :

autisme, prévention du suicide, santé mentale, éducation spécialisée, camouflage social, burnout autistique, sensibilisation à l'autisme, lutte contre le capacitisme

Résumé

L’automutilation non suicidaire (AMNS) et le suicide ne sont pas des concepts nouveaux. Cependant, les stratégies de prévention et d’intervention évoluent. Cet article explore l’automutilation non suicidaire et la suicidalité dans le contexte de l’autisme, en commençant par les enfants et les adolescents qui ne sont pas en situation de handicap âgés de 10 à 24 ans, afin de comparer les différences. Le suicide est l’une des principales causes de décès chez les adolescents et les jeunes adultes, et son taux est inquiétant dans la communauté autiste. Bien qu’il existe des preuves des causes et facteurs de risque de l’AMNS, de l’automutilation et du comportement suicidaire chez les personnes autistes, un examen complet des publications évaluées par les pairs a révélé des lacunes importantes dans la recherche sur la prévention des problèmes de santé mentale graves. Les personnes autistes, qui ont de fortes chances de développer des troubles mentaux, présentent des taux plus élevés d’automutilation de différents types tout au long de leur vie et des cas de suicide plus nombreux que les personnes n’étant pas autistes. Quatre facteurs de risque majeurs pour les personnes autistes sont 1) la démographie et le statut social ; 2) la discrimination fondée sur la capacité et l’altérité ; 3) le camouflage social ; et 4) le burnout autistique. Trois recommandations sont formulées à l’intention des éducateurs sur la manière de soutenir la santé mentale des personnes autistes. Il est nécessaire de se pencher sur l’accent implicite que la recherche met sur la causalité et l’identification des comportements plutôt que sur la création de stratégies préventives globales. Si les éducateurs et les praticiens de la santé mentale connaissent les méthodes d’éducation à la santé mentale et les facteurs de risque de suicide et d’automutilation, en particulier pour les élèves n’étant pas sur le spectre, les élèves issus de la neurodiversité méritent un soutien et une attention équitables.

Biographie de l'auteur-e

Kai Elias Forcey-Rodriguez, First Year M.Ed. Student in Developmental Psychology and Education: Special Education (Autism) and Mental Health Concentration at the University of Toronto-OISE

Kai E. Forcey-Rodriguez

First Year M.Ed. Student in Developmental Psychology and Education: Special Education (Autism) and Mental Health Concentration

Applied Psychology and Human Development Department

University of Toronto-Ontario Institute for Studies in Education

252 Bloor St W, Toronto, ON M5S 1V6

Email:kai.forcey@gmail.com

Références

Ashby, C. (2012). Disability Studies and Inclusive Teacher Preparation: A Socially Just Path for Teacher Education. Research and Practice for Persons with Severe Disabilities, 37. https://doi.org/10.2511/027494812802573611

Baetens, I., Greene, D., Van Hove, L., Van Leeuwen, K., Wiersema, J. R., Desoete, A., & Roelants, M. (2021). Predictors and consequences of non-suicidal self-injury in relation to life, peer, and school factors. Journal of Adolescence, 90, 100–108. https://doi.org/10.1016/j.adolescence.2021.06.005

Baglieri, S., Valle, J. W., Connor, D. J., & Gallagher, D. J. (2011). Disability Studies in Education: The Need for a Plurality of Perspectives on Disability. Remedial and Special Education, 32(4), 267–278. https://doi.org/10.1177/0741932510362200

Berger, E., Hasking, P., & Martin, G. (2013). “Listen to them”: Adolescents’ views on helping young people who self-injure. Journal of Adolescence, 36(5), 935–945. https://doi.org/10.1016/j.adolescence.2013.07.011

Black, M. H., Kuzminski, R., Wang, J., Ang, J., Lee, C., Hafidzuddin, S., & McGarry, S. (2022). Experiences of Friendships for Individuals on the Autism Spectrum: A Scoping Review. Review Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s40489-022-00332-8

Bottema-Beutel, K., Kapp, S. K., Lester, J. N., Sasson, N. J., & Hand, B. N. (2021). Avoiding Ableist Language: Suggestions for Autism Researchers. Autism in Adulthood, 3(1), 18–29. https://doi.org/10.1089/aut.2020.0014

Bottema-Beutel, K., Park, H., & Kim, S. Y. (2018). Commentary on Social Skills Training Curricula for Individuals with ASD: Social Interaction, Authenticity, and Stigma. Journal of Autism and Developmental Disorders, 48(3), 953–964. https://doi.org/10.1007/s10803-017-3400-1

Brammer, R., & Ginicola, M. M. (2017). Counseling Transgender Clients. In Affirmative Counseling With LGBTQI+ People (pp. 183–212). John Wiley & Sons, Ltd. https://doi.org/10.1002/9781119375517.ch14

Buron, K. D., Wolfberg, P. J., & Gray, C. (2014). Teaching a different way of behaving: Positive behavior supports. In Learners on the Autism Spectrum: Preparing Highly Qualified Educators and Related Practitioners (pp. 152-174). AAPC Publishing.

Buron, K. D., Wolfberg, P. J., & Gray, C. (2014). Structures Teaching and Environmental Supports. In Learners on the Autism Spectrum: Preparing Highly Qualified Educators and Related Practitioners (pp. 265-288). AAPC Publishing.

Cage, E., & Troxell-Whitman, Z. (2019). Understanding the Reasons, Contexts and Costs of Camouflaging for Autistic Adults. Journal of Autism and Developmental Disorders, 49(5), 1899–1911. https://doi.org/10.1007/s10803-018-03878-x

Camm-Crosbie, L., Bradley, L., Shaw, R., Baron-Cohen, S., & Cassidy, S. (2019). ‘People like me don’t get support’: Autistic adults’ experiences of support and treatment for mental health difficulties, self-injury and suicidality. Autism, 23(6), 1431–1441. https://doi.org/10.1177/1362361318816053

Cassidy, S. A., Gould, K., Townsend, E., Pelton, M., Robertson, A. E., & Rodgers, J. (2020). Is Camouflaging Autistic Traits Associated with Suicidal Thoughts and Behaviours? Expanding the Interpersonal Psychological Theory of Suicide in an Undergraduate Student Sample. Journal of Autism and Developmental Disorders, 50(10), 3638–3648. https://doi.org/10.1007/s10803-019-04323-3

Chen, Y.-L., Senande, L. L., Thorsen, M., & Patten, K. (2021). Peer preferences and characteristics of same-group and cross-group social interactions among autistic and non-autistic adolescents. Autism, 25(7), 1885–1900. https://doi.org/10.1177/13623613211005918

Crompton, C. J., Ropar, D., Evans-Williams, C. V., Flynn, E. G., & Fletcher-Watson, S. (2020). Autistic peer-to-peer information transfer is highly effective. Autism, 24(7), 1704–1712. https://doi.org/10.1177/1362361320919286

Culpin, I., Mars, B., Pearson, R. M., Golding, J., Heron, J., Bubak, I., Carpenter, P., Magnusson, C., Gunnell, D., & Rai, D. (2018). Autistic Traits and Suicidal Thoughts, Plans, and Self-Harm in Late Adolescence: Population-Based Cohort Study. Journal of the American Academy of Child and Adolescent Psychiatry, 57(5), 313-320.e6. https://doi.org/10.1016/j.jaac.2018.01.023

Duerden, E. G., Oatley, H. K., Mak-Fan, K. M., McGrath, P. A., Taylor, M. J., Szatmari, P., & Roberts, S. W. (2012). Risk Factors Associated with Self-Injurious Behaviors in Children and Adolescents with Autism Spectrum Disorders. Journal of Autism and Developmental Disorders, 42(11), 2460–2470. https://doi.org/10.1007/s10803-012-1497-9

Evans, R., & Hurrell, C. (2016). The role of schools in children and young people’s self-harm and suicide: Systematic review and meta-ethnography of qualitative research. BMC Public Health, 16(1), 401. https://doi.org/10.1186/s12889-016-3065-2

Foley, K.-R., & Trollor, J. (2015). Management of mental ill health in people with autism spectrum disorder. Australian Family Physician, 44(11), 784–790.

Fuld, S. (2018). Autism Spectrum Disorder: The Impact of Stressful and Traumatic Life Events and Implications for Clinical Practice. Clinical Social Work Journal, 46(3), 210–219. https://doi.org/10.1007/s10615-018-0649-6

Gernsbacher, M. A. (2017). Editorial Perspective: The use of person-first language in scholarly writing may accentuate stigma. Journal of Child Psychology and Psychiatry, and Allied Disciplines, 58(7), 859–861. https://doi.org/10.1111/jcpp.12706

Gholamrezaei, M., De Stefano, J., & Heath, N. L. (2017). Nonsuicidal self-injury across cultures and ethnic and racial minorities: A review:. International Journal of Psychology, 52(4), 316–326. https://doi.org/10.1002/ijop.12230

Goodall, C. (2018). ‘I felt closed in and like I couldn’t breathe’: A qualitative study exploring the mainstream educational experiences of autistic young people. Autism & Developmental Language Impairments, 3, 2396941518804407. https://doi.org/10.1177/2396941518804407

Haas, A. P., & Herman, J. L. (n.d.). Suicide Attempts among Transgender and Gender Non-Conforming Adults.

Haddad, F., Gerson, R., & Carson, G.S. (2014). Suicide and self-injurious behaviors. In Helping Kids in Crisis: Managing Psychiatric Emergencies in Children and Adolescents (pp. 35-51). American Psychiatric Pub.

Healey, D. (2022). DisAppearing blindness… with a twist. In Titchkosky, T., Cagulada, E., DeWelles, M., & Gold, E. (eds) DisAppearing: Encounters in Disability Studies (1st ed., Vol. 1). Canadian Scholars.

Higgins, J. M., Arnold, S. R., Weise, J., Pellicano, E., & Trollor, J. N. (2021). Defining autistic burnout through experts by lived experience: Grounded Delphi method investigating #AutisticBurnout. Autism, 25(8), 2356–2369. https://doi.org/10.1177/13623613211019858

Hodge, N., Rice, E. J., & Reidy, L. (2019). ‘They’re told all the time they’re different’: How educators understand development of sense of self for autistic pupils. Disability & Society, 34(9–10), 1353–1378. https://doi.org/10.1080/09687599.2019.1594700

Jokiranta-Olkoniemi, E., Gyllenberg, D., Sucksdorff, D., Suominen, A., Kronström, K., Chudal, R., & Sourander, A. (2021). Risk for Premature Mortality and Intentional Self-harm in Autism Spectrum Disorders. Journal of Autism and Developmental Disorders, 51(9), 3098–3108. https://doi.org/10.1007/s10803-020-04768-x

Jones, E. K., Hanley, M., & Riby, D. M. (2020). Distraction, distress and diversity: Exploring the impact of sensory processing differences on learning and school life for pupils with autism spectrum disorders. Research in Autism Spectrum Disorders, 72, 101515. https://doi.org/10.1016/j.rasd.2020.101515

Kiekens, G., Claes, L., Demyttenaere, K., Auerbach, R. P., Green, J. G., Kessler, R. C., Mortier, P., Nock, M. K., & Bruffaerts, R. (2016). Lifetime and 12-Month Nonsuicidal Self-Injury and Academic Performance in College Freshmen. Suicide and Life-Threatening Behavior, 46(5), 563–576. https://doi.org/10.1111/sltb.12237

Laghi, F., Lonigro, A., Pallini, S., & Baiocco, R. (2018). Peer Buddies in the Classroom: The Effects on Spontaneous Conversations in Students with Autism Spectrum Disorder. Child & Youth Care Forum, 47(4), 517–536. https://doi.org/10.1007/s10566-018-9449-y

Lai, M.-C., Lombardo, M. V., Ruigrok, A. N., Chakrabarti, B., Auyeung, B., Szatmari, P., Happé, F., & Baron-Cohen, S. (2017). Quantifying and exploring camouflaging in men and women with autism. Autism, 21(6), 690–702. https://doi.org/10.1177/1362361316671012

Lee, G., Lifeson, A., Peart, N. (1981). Limelight [Song]. On Moving Pictures [Album]. Mercury Records

Lee, G., Lifeson, A., Peart, N. (1981). Subdivisions [Song]. On Signals [Album]. Mercury Records

Leadbitter, K., Buckle, K. L., Ellis, C., & Dekker, M. (2021). Autistic Self-Advocacy and the Neurodiversity Movement: Implications for Autism Early Intervention Research and Practice. Frontiers in Psychology, 12. https://www.frontiersin.org/articles/10.3389/fpsyg.2021.635690

Liao, K. Y.-H., Kashubeck-West, S., Weng, C.-Y., & Deitz, C. (2015). Testing a mediation framework for the link between perceived discrimination and psychological distress among sexual minority individuals. Journal of Counseling Psychology, 62(2), 226–241. https://doi.org/10.1037/cou0000064

Licence, L., Oliver, C., Moss, J., & Richards, C. (2020). Prevalence and Risk-Markers of Self-Harm in Autistic Children and Adults. Journal of Autism and Developmental Disorders, 50(10), 3561–3574. https://doi.org/10.1007/s10803-019-04260-1

Lowri, C. (2021). Issues in persistent nonattendance at school of autistic pupils and recommendations following the reintegration of 11 autistic pupils. Good Autism Practice (GAP), 22(2), 12-20.

Maddox, B. B., Trubanova, A., & White, S. W. (2017). Untended wounds: Non-suicidal self-injury in adults with autism spectrum disorder. Autism, 21(4), 412–422. https://doi.org/10.1177/1362361316644731

Mantzalas, J., Richdale, A. L., & Dissanayake, C. (2022). A conceptual model of risk and protective factors for autistic burnout. Autism Research, 15(6), 976–987. https://doi.org/10.1002/aur.2722

McDonnell, C. G., DeLucia, E. A., Hayden, E. P., Anagnostou, E., Nicolson, R., Kelley, E., Georgiades, S., Liu, X., & Stevenson, R. A. (2020). An Exploratory Analysis of Predictors of Youth Suicide-Related Behaviors in Autism Spectrum Disorder: Implications for Prevention Science. Journal of Autism and Developmental Disorders, 50(10), 3531–3544. https://doi.org/10.1007/s10803-019-04320-6

Michalko, R. (1999). The Two-in-one: Walking with Smokie, Walking with Blindness (Vol. 1). Temple University Press.

Murdocca, C. (2013). Persistence and Memorialisation: Self-harm and Suicide in Reparation Politics in Canada. Australian Feminist Law Journal, 38(1), 93–107. https://doi.org/10.1080/13200968.2013.10854485

Nock, M. K. (2009). Why Do People Hurt Themselves?: New Insights Into the Nature and Functions of Self-Injury. Current Directions in Psychological Science, 18(2), 78–83. https://doi.org/10.1111/j.1467-8721.2009.01613.x

Oliphant, R. Y. K., Smith, E. M., & Grahame, V. (2020). What is the Prevalence of Self-harming and Suicidal Behaviour in Under 18s with ASD, With or Without an Intellectual Disability? Journal of Autism and Developmental Disorders, 50(10), 3510–3524. https://doi.org/10.1007/s10803-020-04422-6

Paradies, Y. C. (2006). Defining, conceptualizing and characterizing racism in health research. Critical Public Health, 16(2), 143–157. https://doi.org/10.1080/09581590600828881

Staniland, L., Hasking, P., Boyes, M., & Lewis, S. (2021). Stigma and nonsuicidal self-injury: Application of a conceptual framework. Stigma and Health, 6(3), 312-323. https://doi.org/10.1037/sah0000257

Strauss, P., Cook, A., Watson, V., Winter, S., Whitehouse, A., Albrecht, N., Wright Toussaint, D., & Lin, A. (2021). Mental health difficulties among trans and gender diverse young people with an autism spectrum disorder (ASD): Findings from Trans Pathways. Journal of Psychiatric Research, 137, 360–367. https://doi.org/10.1016/j.jpsychires.2021.03.005

Summers, J., Shahrami, A., Cali, S., D’Mello, C., Kako, M., Palikucin-Reljin, A., Savage, M., Shaw, O., & Lunsky, Y. (2017). Self-Injury in Autism Spectrum Disorder and Intellectual Disability: Exploring the Role of Reactivity to Pain and Sensory Input. Brain Sciences, 7(11), Article 11. https://doi.org/10.3390/brainsci7110140

Swannell, S. V., Martin, G. E., Page, A., Hasking, P., & St John, N. J. (2014). Prevalence of Nonsuicidal Self-Injury in Nonclinical Samples: Systematic Review, Meta-Analysis and Meta-Regression. Suicide and Life-Threatening Behavior, 44(3), 273–303. https://doi.org/10.1111/sltb.12070

Thornhill, E. M. A. (2008). So Seldom for Us, So Often Against Us: Blacks and Law in Canada. Journal of Black Studies, 38(3), 321–337. https://doi.org/10.1177/0021934707308258

Troya, M. I., Spittal, M. J., Pendrous, R., Crowley, G., Gorton, H. C., Russell, K., Byrne, S., Musgrove, R., Hannam-Swain, S., Kapur, N., & Knipe, D. (2022). Suicide rates amongst individuals from ethnic minority backgrounds: A systematic review and meta-analysis. EClinicalMedicine, 47. https://doi.org/10.1016/j.eclinm.2022.101399

Warrier, V., & Baron-Cohen, S. (2021). Childhood trauma, life-time self-harm, and suicidal behaviour and ideation are associated with polygenic scores for autism. Molecular Psychiatry, 26(5), Article 5. https://doi.org/10.1038/s41380-019-0550-x

Whitley, J., Smith, J. D., Vaillancourt, T., & Neufeld, J. (2018). Promoting Mental Health Literacy Among Educators: A Critical Aspect of School-Based Prevention and Intervention. In A. W. Leschied, D. H. Saklofske, & G. L. Flett (Eds.), Handbook of School-Based Mental Health Promotion: An Evidence-Informed Framework for Implementation (pp. 143–165). Springer International Publishing. https://doi.org/10.1007/978-3-319-89842-1_9

Wolfe, K. L., Foxwell, A., & Kennard, B. (2014). Identifying and treating risk factors for suicidal behaviors in youth. International Journal of Behavioral Consultation and Therapy, 9, 11–14. https://doi.org/10.1037/h0101634

Wood-Downie, H., Wong, B., Kovshoff, H., Mandy, W., Hull, L., & Hadwin, J. A. (2021). Sex/Gender Differences in Camouflaging in Children and Adolescents with Autism. Journal of Autism and Developmental Disorders, 51(4), 1353–1364. https://doi.org/10.1007/s10803-020-04615-z

Zangeneh, M., & Al-Krenawi, A. (Eds.). (2019). Culture, Diversity and Mental Health—Enhancing Clinical Practice. Springer International Publishing. https://doi.org/10.1007/978-3-030-26437-6

Téléchargements

Publié-e

2023-04-25

Comment citer

Forcey-Rodriguez, K. E. (2023). The The Risk Factors and Preventative methods of Self-Harm and Suicidality for Autistic People. Revue canadienne de l’équité en matière d’autisme, 3(1), 12–26. https://doi.org/10.15173/cjae.v3i1.5127